Posted on April 23, 2014

Today’s post is by SBACFL member and guest blogger, Nicole Small.  This is her fifth guest post.


1.       Over my 24 yrs of surgeries, and in my everyday life, I’ve come to realize that everyone is different. Because you have a somewhat similar situation to someone else, that doesn’t necessarily mean that your journey will be a carbon copy of the other individual’s experiences.

2.       Always trust your instincts; you are the one who best knows your body.   You are the only one who has been living in it your entire life.  Take others’ opinions into consideration, but the ultimate decisions you make should be up to you, because you are the one who has to live with the resulting outcomes.

3.       Adapt, adapt and adapt. God made you this way for a reason, so do not dwell on a certain situation for too long.  Remember, ‘if at first you don’t succeed try, try, try again.”  God wouldn’t have made you this particular way if He didn’t think you were up to the challenges you would face.  Yes, living with a disability such as Spina Bifida can be a challenge at times, but learning to adapt in our own particular circumstances can make our challenges easier to conquer.

4.       Surround yourself with positive people. If people leave your life for a particular reason, then they were not meant to join you on your amazing journey that we call life. You are probably wondering why I said amazing, because amazing and Spina Bifida do not usually go into the same sentence.   The answer can be found in #5.

5.       You can CHOOSE to make your life amazing by purposely doing things that suit you and your situation. People will  guide you to do things their way because that’s what they think is best for you.  Be careful who you listen to for advice, and make sure you believe they are the ones who are looking out for YOUR best interest, and really listening to what you think and how you feel.   If they are meant to be in your life, they will never leave your side even when you go in a different direction from the one they advised you to take.

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