I Could’ve Missed The Pain But I would’ve Had To Miss The Dance

Posted on August 19, 2014

Today’s post is by SBACFL member and guest blogger, Nicole Small.  This is her fifth guest post.

When you are told that your child has a disability such as Spina Bifida, there are choices that you can make. Like anyone who is expecting a baby, you will be faced with three options. You can keep the baby yourself, terminate the pregnancy, or give it up for adoption.  I personally believe that one who  gives birth to a disabled child, has been chosen for that privilege by a higher power who knew you would be capable of doing all that is needed for such a child.

Having a child with Spina Bifida comes with lots of concerns and sleepless nights, and questions about your child’s ability to fulfill his hopes and dreams.  Every child is capable of living life to his fullest potential, tho of course there will be specific adjustments necessary for the disabled child. I would not choose to give my disabled child up for adoption, because I would always regret that I gave up on my child without even trying.

The purpose of this blog is to encourage those parents who are given a child with Spina Bifida.  It is okay to seek help to guide you through this life long journey. No one should be scared because your child has special needs.   Someone from above knew you were strong enough to take on this task  of life, or what I like to call “the dance.”

When making your decision as to what you will do if told that your baby has Spina Bifida, I urge you to consider my own experience as a person with that diagnosis.  Yes, I have Spina Bifida,  but it doesn’t have me! I do not let it determine how I choose to live my life.  When I was growing up, it did have a greater influence in what I could do because of the surgeries and other necessary medical needs.  But as I became an adult, now nearing 25yrs old, my disability does not define who I am.

The reason I decided to begin blogging about  Spina Bifida, is that I hope by sharing my experiences, others who go thru similar difficulties will be encouraged to keep pressing on to reach their own goals and desires. Yes, things occasionally do come up to remind me that I have a disability.  But I quickly find ways to resolve the issue and move on.  Everyone will face challenges, but we can choose to face these issues head on and continue to keep pressing on to victory. I could have given up and missed a lot of pain, but that would have also caused me to miss out on a bigger thing I call “the dance ” (life).

1 comment(s)

  1. Inspiring!

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