Are there any membership dues to be a member of SBACFL?
No, membership is free.
How do I join to become a member?
Complete our online membership application.
How can I be more involved as a member of SBACFL?
If you’d like to be more involved in planning events, sharing feedback, or volunteering you may be interested in serving as a member of our SBACFL board. If you’re interested send us an email at firstname.lastname@example.org.
What areas of Florida does SBACFL offer services too?
Our service area extends to 22 counties in Central, East Central and West Central Florida, but membership is open to all Florida residents. Here’s a complete breakdown of the counties included in the SBACFL service area: Marion, Sumter, Lake, Seminole, Orange, Osceola, Polk, Hardee, Highlands, Citrus, Hernando, Pasco, Pinellas, Hillsborough, Manatee, Sarasota, DeSoto, Volusia, Brevard, Indian River, Okeechobee and St. Lucie.
How does SBACFL support the local spina bifida community?
SBACFL supports the spina bifida community financially through scholarships, medical reimbursements and emergency or hardship aid. SBACFL also provides support through programming to help connect the spina bifida community and provide fun activities. SBACFL sends out a bi-monthly newsletter as well as additional emails about upcoming events and resources that are available to the spina bifida community.
I am an expecting parent and just learned my baby will be born with spina bifida, do you have any advice?
It can be overwhelming news to learn your baby will be born with spina bifida. First, do not “google” it, you may not find the most useful information. The CDC’s web site and the Mayo clinic’s web site have useful and reliable information to learn more about spina bifida. We encourage all families to connect with their local spina bifida clinic and schedule an appointment to meet with those that lead the spina bifida clinic. They will help you better understand spina bifida and share any resources to help prepare you before your baby’s arrival. We also encourage you meet with a pediatric neurosurgeon to discuss spina bifida. Neurosurgeons will be among the best medical advisors and will likely be some of the first doctors involved in your child’s medical care.